Head of Campaign, Policy and Public Affairs

As Head of Campaigns, Policy and Public Affairs, you will lead our work in securing policy changes that makes things better for people affected by Motor Neurone Disease (MND).Too many people affected by MND are not getting the right level of care and support. So you will be responsible for the policy development, political and governmental engagement, and campaigning to address this. So along with a compassionate and nurturing leadership style, you will approach the role with pace and ambition, and a real impatience to deliver meaningful change.MND awareness has increased dramatically, including among policymakers. So this is an opportunity to use your skills and experience to make a real difference to people with MND and their loved ones.Key Responsibilities Lead, manage, develop and deliver impactful campaigns, policy and public affairs activity with impact for people affected by MND Set priorities that reflect evidence, lived experience and political opportunity Develop relationships and influence decision-makers across Westminster, the Senedd and Stormont Build strong relationships with policymakers, the NHS and sector partners Ensure campaigns are planned, bold, creative and urgent in delivery Strengthen and support our community of campaigns volunteers Chair our internal access to treatments group Lead, support and develop the Campaigns, Policy and Public Affairs team Act as a key external spokesperson for the Motor Neurone Disease AssociationAbout You An exceptional ..... full job details .....