Charity Manager
Charity Manager The Noah Jordan Foundation Location: Cornwall, UK Salary: £35,000 £40,000 (depending on experience) Hours: Full-time preferred (part-time may be considered) Reporting to: Charity Director Working closely with: Board of Trustees Additional Requirements: Flexibility to work occasional evenings and weekends in line with events, campaigns and charity activities, with willingness and ability to travel across the UK as required. About The Noah Jordan Foundation The Noah Jordan Foundation is a fast-growing UK children s charity established in memory of Noah, who died in 2024 from POLG mitochondrial disease, a rare and devastating paediatric mitochondrial disorder which can cause severe neurological deterioration and liver failure in children, and for which there is currently no effective treatment or cure. Following Noah s death, his family made him a promise: that his legacy would help change the future for children and families affected by mitochondrial disease. The Foundation was established to deliver that promise through three charitable objectives: Medical Research Funding pioneering medical research to improve clinical management, accelerate the development of effective treatments and ultimately help drive progress towards cures for rare paediatric mitochondrial diseases, including POLG-related mitochondrial disorders. Raising Awareness Increasing awareness and understanding of mitochondrial disease amongst healthcare professionals, organisations and the ..... full job details .....
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